NIMH PANS Symptom Scale

https://word.office.live.com/wv/WordView.aspx?FBsrc=https%3A%2F%2Fwww.facebook.com%2Fdownload%2Ffile_preview.php%3Fid%3D176811249122801%26metadata&access_token=1451921825%3AAVIhRpnQ6vSFJ-r3En5N7uyyMIDZPyp_LesenqmWsaQK3A&title=PANS+Scale.doc

Description of first 50 Cases of PANDAS

http://intramural.nimh.nih.gov/pdn/PANDAS-REF2.pdf

Azithromycin - just started to take this

Following the augmentin that my son took from May to July, he improved by 20%. Slowly, since that time, he has gone back to the same level of ill health as before.

Yesterday he started on Azithromycin.  We have Lyme (big surprise) and high strep titres (over 800) in the family.   Hopefully, there will be no allergic reactions.  Azithromycin is now also a recognised treatment for Oesinophilic Gut Disease  - I am hoping that his stomach aches may also improve.

Learning the other day that IVIG has been known to cure Oesinophilic Gut Disease makes this option more appealing.  I had turned my back on it - but will research it again.

I look forward to one day having a child free of illness who can, once again, get on with enjoying his life.

PANDAS in the News

http://www.wndu.com/home/headlines/Parent-alert-Strep-infection-causes-mental-illness-171580321.html

Lyme & Autism - Charles Ray Jones on You Tube

http://www.youtube.com/watch?v=NoEsgLyN2-0

Dr Trifiletti chats about PANDAS - hour radio show 19/9/12

http://www.blogtalkradio.com/radiopandas/2012/09/20/house-calls-with-dr-trifiletti--antibioticsprobiotics

Some excellent, must-watch videos about Lyme ...

http://www.lyme.ws/lyme-induced-autism-part-i/

part 2 follows this.

Interesting and thorough Lyme Site

http://buhnerhealinglyme.com/category/co-infections/bartonella/

PANDAS on youtube

http://www.youtube.com/playlist?list=PL675CB18FD542CEDA&feature=mh_lolz

A selection of videos on you tube.

Part of healing will be eating a nutritious, anti inflammatory diet

I had a chat with a nutritionist yesterday and as well as some supplements, I need to get back to basics - so here goes to chicken broth:

http://lifefoodjourney.blogspot.co.uk/2011/11/my-chicken-broth-process-method.html

The GAPS diet is one I have roughly followed for a couple of years - this site has some great recipes that I will be making:

http://lifefoodjourney.blogspot.co.uk/p/gaps-recipes.html

Great Burrascono Lyme talk on youtube

http://www.youtube.com/watch?v=fv2HS8J58qY&feature=youtu.be

An interesting new Lyme blog site I have just found ...

http://lymeywifey.blogspot.co.uk/

Amoxicillin failure in strep throat

http://www.pediatricnews.com/views/id-consult/blog/amoxicillin-failure-in-strep-throat/bedfe23ae75bfc7dd86f8bc32c438492.html

App to help those with OCD

http://www.liveocdfree.com/
I have heard good things about this - but am not a doctor and have not looked at it myself so cannot give a personal recommendation.

Some info about Bartonella ... cat scratch or a co-infection from ticks

http://jmm.sgmjournals.org/content/51/11/915.full

Bartonella - by J Schaller

http://www.personalconsult.com/free/Checklists2012.pdf

The power of herbs - an article explaining what some may do ...

http://nutramedix.ec/pdfs/antimicrobialcompared_Bs.pdf

New European Guidelines for Tourettes

http://peer.ccsd.cnrs.fr/docs/00/68/35/00/PDF/PEER_stage2_10.1007%252Fs00787-011-0164-6.pdf

Radio interviews with Beth Maloney and Rosario Trifiletti - excellent information given

http://www.blogtalkradio.com/ppn