Slow progress

My son has now been on augmentin for 7 weeks - but I do not think that the dose is high enough and therefore progress is slow.  On the positive side, there is progress.  We have been into London 3 times this month and my son has undergone various examinations from a barium meal to an abdominal scan.  We do not yet know why his stomach hurts so much - but are following up the results from a stool sample that was sent away before he went onto antibiotics and that indicated possible Crohns or colitis.  The endoscope examination is still to come and not all blood results are back yet.

A sample of blood was, in addition, sent to Igenex in the States to be tested for Lyme disease and Bartonella. I could not afford for all the other co-infections to be tested for.  Those results are due this week.         I hope it is not one of these, but on the other hand it would explain a lot if any positives show up.  Testing for Lyme and its co-infections is very difficult to do though and tests sometimes give a false negative, I believe.  Lyme is often diagnosed on symptoms - a clinical diagnosis.

I wish I could afford to rent a rambling cottage by the seaside and disappear there with my family for the summer.  Some good fresh air would do us all good.

I battle on with the hope of finding a doctor who will take PANDAS and PANS seriously and give my son the proper care he needs.  A full set of blood tests would be a good start - but they  have not yet been approved by anyone here.