Today has had its up and downs. The herx reaction seems to be still there causing emotional turmoil in my son. He is in control though and, whereas he got cross and threw his chair over, he did not swipe the books off the shelf or do any of the other things he used to do with PANDAS at its height. What I do hate is the PANDAS shriek - it is really high pitched and painful to hear - and we have had a few over the last couple of days.
All in all things seem to be improving. There was the foot tic again yesterday when my son went up onto his toes a couple of times, but that soon went. He was eating a little less yesterday, but has picked up today.
His medication comes as individual foil wrapped tablets. Thank goodness for that - they meet his OCD standards and he has no problems taking them. I think that a lot of antibiotics are liquid and there would be issues with that.
We have a very important meeting with a Pandas doctor on Monday and I must start pulling together a diary of information. In fact, I must send that onwards in case we arrive late for the appointment - the doctor can spend our missed appointment time browsing my child's history. How we will travel into London is going to be, well, quite challenging to say the least.
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