I have read Beth Maloney's Saving Sammy and bought her toolkit - worth every dollar:
http://www.savingsammy.net/products-and-services.php
I have spent hundreds of hours trawling the internet for information.
Amazingly, my son has given a blood sample and now all we have to do is wait. Wait for the results and hope that something shows that can be quickly treated.
I found a list of specialists in this country (only 3 listed) and have booked an appointment with one of them. It is so frustrating this wait, especially when I read that IVIG gets better results when performed before the child becomes a teenager. We are running out of time on that one. Also, I want my child back at school and am fighting for a statement of special educational needs - why am I fighting? Why don't these kids get the help they need without a fight? Twice now a statement has been turned down. It does not make sense.
My shoulders are broad - I will get my son better.
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