Wednesday, 16 January 2013

Sue Swedo PANDAS Q&A, from Feb 2012

http://thebatavian.com/howard-owens/q-dr-susan-swedo-regarding-pandas/30364

Education - lack of

Not only is there a lack of acceptance of appropriate medical care for our children with PANDAS - but accessing education is also made difficult.  We are going to tribunal in a couple of months to try to get the appropriate provision that my son deserves.  I cannot see why it has been made so difficult.  Anyway, I am full of hope that things will change.

PANDAS on TV - Doctors

http://www.thedoctorstv.com/videolib/init/5141

So great to see Sammy looking so well.  We owe him so much for allowing his story to be shared.

Sunday, 6 January 2013

Article about boy with PANDAS in the news

http://www.timesdispatch.com/entertainment-life/health/for-kids-infection-can-spur-deeper-condition/article_dfb62091-5d0f-5fbf-841c-d23866db554a.html

Friday, 4 January 2013

Eosinophilic Gut Disease - report

My son has severe eosinophilic gut disease - here is some info about it.

http://www.hindawi.com/journals/scientifica/2012/682576/

Thursday, 3 January 2013

Radio show discussing MTHFR - excellent

http://www.blogtalkradio.com/mthfrsupport/2013/01/03/mthfr-supports-first-show