Help with GAPS diet - soothing and healing for the gut

http://empoweredsustenance.com/scd-and-gaps-essential-posts/

Stimulant drugs and tics

http://www.additudemag.com/adhd/article/9759.html

PANDAS and biomedical intervention - by Kurt Woeller

http://drkurtwoeller.blogspot.co.uk/2009/02/could-your-childs-behavior-be-related.html

Candida - information

http://www.gilbertssyndrome.com/candida.php

http://www.candidaplan.com/new/faq_2/faq.php?t=sq&uin=11

Progress

I am pleased to report that my son is now 30% better.  The azithromycin is slowly helping him to rid his body of whatever is making him so ill.  In addition to killing bacteria, it is also an anti-inflammatory and I think there is research into using it for Eosinophilic Gut Disease - which he has.  So somehow it is working its magic and my son is reappearing.  So happy.

I have also got the results of an OAT test from Great Plains Laboratory - and that is allowing me to know where to target with vitamins.  My son also has yeast and clostridia - and we are targeting these too.  On its own yeast can cause some serious symptoms.  I will put up a list when I get time.

CD57 - Lyme related blood test - informative article by Ginger Saveley

http://www.researchednutritionals.com/information.cfm?ID=200

Hans Christian Anderson' Quote

Just living is not enough.


One must have sunshine, freedom, and a little flower.

OATS Test - urine marker analysis

Attended an excellent seminar at the weekend.  I was so lucky that Dr William Shaw went through my son's OATS results with me.  I feel I have a good understanding of what is going on now and how to correct some of the deficiencies.  My son's doctor recommended vitamins - but now I know why and that makes me feel much happier.

Here are some lectures - including one about cholesterol - I didn't realise that it wasn't good to have a very low cholesterol level.

http://www.greatplainslaboratory.com/home/eng/recorded_webinars.asp

My son related to others today and laughed and played some ball games with them.  It made my heart sing.

My son is improving

We have travelled along a very rocky road but my son is at last making steps in the direction of health again. The Azithromycin is doing its job well, helped by 4 weeks with an additional antimicrobial and a few nutrients to help where we have found deficiencies in blood tests.

There is still a long way to go, but when my son asked how long it will take to get better and the doctor replied that he would hope to be shaking his hand in a year - it warmed my heart.  I would so love to hug my child - but he cannot tolerate anyone near to him yet - not even his mum.

IgG1, 2, 3 and 4 - recommended PANDAS diagnostic test

My son scored low on one of these so I had a quick search to see the basics of what they are - his doctor will, of course, explain more fully.  But, in the meantime, here is a quick overview:

http://www.cidpusa.org/IgG3deficiency.html

This is a little more technical:

http://ednieuw.home.xs4all.nl/IgGsubclasses/subkl4.htm

MTHFR - find a doctor and other useful information

http://www.mthfrsupport.com/

MTHFR - compound heterozygous

I keep trying to learn about this and now also have oxalates to learn about -  more about that another time.  I think I have put an article about MTHFR before - to add to it is this which is useful:

https://sites.google.com/site/drjoneskids/mthfr

Dr Jones is a real star in the States - a real leader amongst Lyme doctors.  Humble with it.

http://mthfr.net/

and this is the type of testing that is available - or a more simple test from your own doctor if they offer it should be available:

http://www.holisticheal.com/health-tests/nutrigenomic-testing/comprehensive-methylation-panel-with-methylation-pathway-analysis.html

CD57 Blood Test - Lyme

What started out as a journey to find out if my children had PANDAS has gotten ever deeper.  We have now uncovered MycoP, Lyme, Strep, Bartonella and other infections.  The results for a recent CD57 blood test have just come in.  My result is 16 and one of my son's has a level of 20 and other markers.  This site gives a good explanation of what this means:

http://www.healthcentersofamerica.com/information.cfm?id=144

New PANDAS Blood Test: Madeleine Cunningham and Rosario Trifiletti

http://www.blogtalkradio.com/radiopandas/2012/11/08/house-calls-wdr-trifiletti--pandas-test-breakthrough

Long radio discussion about PANDAS with experts Dr Trifiletti and Dr Cunningham.

IVIG - information on the different brands

http://www.ashp.org/s_ashp/docs/files/DShort_IVIGsidebysideupdatedDec07.pdf

My son's health is improving

My son is, at last, starting to get better again.  The amoxycillin from May to July improved his health by 20% and then, when it was stopped, he deteriorated back to where we began.  He is now taking azithromycin and  some vitamins - the ones blood and hair tests showed he was low in - and I am beginning to see him improve again. Happy days.

Black mold

Black mold in our houses and schools can pose a serious health risk if it develops.  This article describes a little about the problem:

http://www.essortment.com/black-mold-46777.html

and with the recent hurricane and flooding in America, this following CDC report also gives insight:

http://www.cdc.gov/mmwr/preview/mmwrhtml/rr5508a1.htm